Saturday, October 31, 2020

Case Study #89 - Aaron Visiting Tibet

"Aaron Visiting Tibet" Oil on Canvas. 30" x 24"

Aaron Anderson was born in Michigan in 1981. He was a chubby little blonde who never met a ball he didn’t want. He excelled in gross motor skills and language development. The diagnosis of NF1 at age three was a shock. If a friend hadn’t shown his mother her own daughter’s cafe-au-lait spots, the family would never have guessed that anything was amiss. 

Apart from some fine motor delays and a moderate degree of ADD, Aaron’s NF had only minor impact on his early school years. His thoughts would get ahead of his slow handwriting, which made for messy assignments. Although he learned easily, his notebooks were a chaotic mess. He left a trail of possessions wherever he went. He studied in 20-minute bursts and always with TV or music (hiphop) going. At night the hum of a fan helped him sleep. On the plus side, his quick wit, diplomacy and generous nature made him everyone’s friend.  Besides his love for balls, ball sports and music, he continued to add new interests.

After junior year he entered a two-year international baccalaureate program in New Mexico. The program, designed to promote world peace, had only 200 students - 50 Americans and 150 from dozens of other countries. There he developed an interest in Tibetan Buddhism and added friends from around the world. Next was the University of Michigan, where his ADD caught up with him. Having chosen grades over sleep, he was heading toward a crash.  Enter Concerta, the salvation of his college career.  By cosmic good fortune Michigan regularly hosted a summer Tibet program.  This painting is from a photo taken on the first of three Tibet trips. In those same years his music passion shifted to a genre known as Northern Soul produced in nearby Detroit. He would scour Detroit junk shops, “digging” for obscure 45s from the 60s and 70s. 

In 2006 Aaron was accepted into a PhD program in California to study child development. It only took a year to realize he wasn’t enjoying life as he had in Ann Arbor. Grad school didn’t have room for his wide-ranging interests. He planned to finish the two-year Master’s degree and recalculate his future.  Everything changed in March 2008; he stopped going to class, answering emails, texts, phone calls or knocks on his door. It took three months of this reclusive behavior to get him admitted to the psych ward of the university’s hospital. Within two days came the answer - a tumor deep in his brain, malignant and inoperable. Six months of treatment brought him back to his fun-loving self.  At  nearly 28 years old, he moved home to Michigan to live his best life, not as an academic, but as a DJ and record dealer. He died in Buddhist peace at age 30, leaving a trail of friends around the world.

The story continues past Aaron’s death in Sept. 2011. With the help of his neuro-oncologist at Michigan and NF researcher, David Gutmann in St. Louis, Aaron was able to donate his body to the Univ. of Michigan and his brain to Dr. Gutmann’s Washington University lab. Within seven years the speed and accuracy of genome analysis increased so significantly that the progression of the brain tumor, a glioblastoma, could be tracked through its many genetic changes.  A brief paper about the tumor appeared in the journal Neurology in late 2019. The family cheered. Take a bow, Aaron!

Friday, October 23, 2020

Case Study #88 - Patricia Relaying for Life

"Patricia Relaying for Life"
Oil on Canvas. 30" x 24". 2020.

While growing up in Jackson, TN, Patricia and her family had never heard of NF. Their doctor told the family it was just fatty tumors. When Patricia's brother was a teen, she was in her early 20s. He started having some serious issues and was sent to a neurologist and that was when the family learned exactly what they had. Patricia had a fairly normal childhood. Looking back now she can see some issues that were probably because of the NF. She and her siblings inherited NF from her mother. Patricia's sister and two brothers also had NF. Her mother as well as her sister and one of her brothers died from NF related cancer. 

Prep Sketch 
Patricia had breast cancer and had a mastectomy 6 weeks before her daughter, Amber died from her NF related brain cancer. Amber was only 24 when she passed away. Her son Justin has NF too. Her son's case is relatively mild. When Amber was little, Patricia and her husband were not planning on having anymore children because Amber's NF was severe. Amber was born with a brain tumor, optic glioma, and a mass in her neck. Amber had the brain tumor removed at 1 year. The Lord surprised and blessed them with Justin. Patricia is so thankful for both of her children.

Patricia attended Tennessee Vocational Technical earning her LPN in 1974. She retired from nursing in 2015 the same year she celebrated 10 years as a cancer survivor by participating in the Relay for Life walk.