Saturday, January 21, 2023

Case Study #107 - Duke Reading His Favorite Magazine

"Duke Reading a Magazine" 30" x 24" Oil on Canvas.

Duke Smith was diagnosed with neurofibromatosis type one (NF1) as a young child. He was seen by several specialists at Shriners hospital to confirm the diagnosis. As a child he had just a handful of surgeries to help manage some of the symptoms of NF. He, like many other patients with NF struggled in school, learning was a challenge but he persevered and graduated high school. He has a slight speech impediment which can be typical for people with NF. He didn’t develop the skin tumors until young adulthood, and now he has a lot of them throughout the body. Duke suffers from itching and pain, but he keeps pushing through. Duke feels lucky that he doesn’t have the severity of NF symptoms like many others do. Duke loves reading and especially enjoys suspense and horror stories. He has great knowledge of celebrities which he will then share facts about them during movies and television shows. One could ask him anything about celebrities and he probably could answer correctly. 
Prep Sketch
Duke met his wife, Laurie, who also has NF in an online chat room for people with neurofibromatosis back in June 2002. Duke was living in Kentucky and Laurie was living in Virginia. After a couple of months of online chatting they met face to face in Tennessee later that summer in August. They were engaged November 2002 and married in Kentucky in July 2003. They decided it was best for Duke to move to Virginia so Laurie could continue to see her NF specialists who keep her as healthy as possible. They do not have children but they share an apartment with their two cats.

Case Study #106 - Lesslee Walking for NF Awareness

"Lesslee Walking for NF Awareness" 30" x 24" Oil on Canvas. 2023

Lesslee has Nuerofibromatosis Type 1 (NF1) and works as a team lead in the deli/bakery department of Walmart in Butler, Missouri. She started there in 2015 and loves her job and coworkers almost as much as she loves a good cup of coffee! Her friends delight in giving her a hard time and reminding her of that very much needed first cup of joe. 

Sketch for painting
She’s is known for her spunky spirit that just might come from her signature red hair or perhaps it is from her desire to not give up or let NF define her. In July 2020, during the height of Covid, she had a very large tumor removed in her leg. It had caused her to limp months prior to the surgery. She had also been on Kuelsugo to help shrink the tumor. Lesslee receives her care at both the Mayo Clinic in Rochester as well as back home. Prior to that surgery she had already had (at least): 4 ultrasounds, 4 different MRI’s (one involved the neck and entire spine) and 3 CT scans. A needle biopsy, tested for covid-19 and blood work (no count) and then the surgery. NF can really take a toll. She’s a proud and involved mom of two energetic and active kids, Samantha and Edmund. Lesslee views motherhood to be the greatest emotional investment of her life. Nobody has made her more proud, happy and full of love than her children have. Her son, Edmund, like herself also has NF1. 

She enjoys being active with the Children’s Tumor Foundation and being involved in the Shine a Light NF walk held in Kansas City.