Barbara was diagnosed with NF1. She had thousands of internal tumors, two in particular were in her cervical spine and had caused almost a full spinal cord impingement. Since that day, Barbara has had seven surgeries. NF has left her weak on her right side and she can no longer hold a pencil to draw and hasn’t been able to in many years. NF has made life a struggle. but she really doesn’t mind, she would love for a cure to NF. Her motto is "Life is beautiful even when it’s not." Barbara lives in a small town where not many people have ever heard of NF. Every year she contacts different advocates and hospitals and NF clinics including the one that she receives care at, Mass General in Boston. She gathers reading material and flyers and passes them out to all of the physician's offices in her area. Barbara even carries personal business cards that have her picture and a brief description of NF. The business card also includes links to NF Northeast and the Children’s Tumor Foundation for further research and donation options.