Thursday, September 10, 2020

Case Study #86 - Lars Responding to Messages

Prep Sketch

Lars Roeyen (1997-2014) 

Lars lived in the city of Genk within the region of Limburg, Belgium. He was born with a predisposition disorder. When he was 2 years old we noticed that his fine motor skills showed some defects. An MRI showed something but it was not clear and was not looked into further by the attending pediatrician. Kinetic therapy was recommended. Then suddenly at the age of 16 he got a bump on his head that the doctor thought was a fat bump. Lars was disturbed by this bump and he was bullied with it at school. A cardiovascular surgeon removed his bump under local anesthesia and saw that it was attached to the nerves. She immediately made the link at NF and a new MRI showed that he had one tumor in the brain stem, one on and a larger older one outside. In total he had 19 tumors spread on the spiral cord and face. He walked into hospital for an urgent brain operation and came out with paralyzed hands and legs.TV and Facebook were his only outlet and even with this he needed help. Despite all this he remained optimistic with an indescribable humor. On  November 1, 2014 he said goodbye to us with a very scared heart about what was to come. 

NF changed the lives of his family forever. He wanted to be famous for 1 day and he succeeded. He was invited on Q-Music which is a famous Belgian radio station. While the family was there the big boss saw him and asked to follow Lars for the rest of the day to make a newsflash. The man onthe radio station broadcasted to the people listening to write Lars cards while he was in the hospital. He got about 4,000 cards in the rehabilitation clinic and also at home. There were even people who sent the family some money for a drive with the special cab. (This was very expensive! Lars never left home for the rest of his days after it.) Lars got letters from all over the world including the queen and king of Belgium as well as their army. His sister, who is three years older, was his mainstay, nurse and best friend as well as his dog Pepa who rode everywhere on the rock chair. Lars was a NF2 warrior.

1 comment:

pabriss said...

What an amazing story of bravery!