|"Nichole Ringing in the New Year" Oil on Canvas. 2017. 30" x 24"|
For 13 years, NF spared Nichole and laid “dormant” until it threw another curveball shortly after her 30th birthday. She began to have facial weakness on the left side. The cause was the brain tumor which had already been removed after it staked its claim on her hearing; it had come back for more and now claimed one side of her face along with another tumor on the opposite side waiting in the wings to take the right side of her face. Needless to say, NF brought a rash of procedures and hospitalizations, 6 brain surgeries within an 18-month time span, and left her literally expressionless. Among her many procedures, she has since received is an ABI (Auditory Brainstem Implant) which helps her “hear” sounds again, and Facial Reanimation surgery which has restored part of her facial functions. NF hasn’t stopped there. Its latest claim has been that of her spine with several tumors on/in the spinal column which have needed removal, required rehab and left her with a little hitch in her step. Despite all the roadblocks of life, Nichole keeps a positive outlook due to the outpouring of love and support from all her family and friends, as well as her strong faith.
NF has claimed the sound from her life, put a hitch in her step, and has taken the true smile from Nichole’s face, but it will never take the smile from her heart as it looks to the future in hopes that one day a cure can be found for her and others like her who live with NF. That is why Nichole has become actively involved with the national Neurofibromatosis Network. She also currently serves as the President of the NF Central Plains chapter, participates and supports the NF advocacy program, and for the last 10 years, has helped raise more than $30,000 for the NF Network. She is happily married and resides in a small town in Southeast Kansas.