Diagnosed with NF1 at the age of 6 months, Loni has undergone over 13 surgeries to correct the pseudoarthrosis in her tibia and to have tumors removed. It wasn't until 2013 that Loni discovered there were people in the world advocating to find a cure for NF. When she and her husband were starting to plan a family, they learned about the Cupid's Undie Run and their determination to End NF through raising money for the Children's Tumor Foundation. She immediately wanted to jump on the train and became the Race Director for Mason City, Iowa. Since Mason City's inaugural year in 2014, North Iowa has raised almost $190.000 ear marked for research to END NF.