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| "Woan-Harn Running a Race" 30" x 24" Oil on Canvas |
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| Prep Sketch for Woan-Harn Running a Race (我的生命歷程與自我價值) |
Woan-Harn was lucky because as well as
close friends came the support and encouragement from the Sunlight Foundation and Accton Public Museum assistance, so that was like having another NF friend. These organizations provide the opportunity for fellowship together and
share feelings with each other. The Sunlight Foundation and the National
Taiwan University, Chang Gung Memorial Hospital also holds occasional free
clinic and medical lectures, through talks and clinic activities, so the NF community can
better understand ourselves.
Because of this, Woan-Harn thought she wanted to help more people, and
therefore decided to engage in Social welfare work. She joined the Spiritual Child Development Center, which gave her insight into different life
experiences, and her colleagues also gave her a lot of encouragement and positive
support, and empowered her to believe that feel that she can do the things she want to
do, and have the ability to help other NF friends!
Woan-Harn feels very fortunate in assisting the Sunlight Foundation, Accton
Public Museum, by recruiting several NF friends, asking professional social
workers, psychologists, and even a theater teacher, to help the foundation focus on activities around:leadership, empathy and care, etc. In the process of these meetings, everyone grew lot, and after nearly three
months of intensive training and meetings, finally gave birth to a new NF centered charity: "Peas Dragon Association" (Sunshine nerve
fibroma patients Association). In Woan-Harn's words, "I hope to be able to scale
new heights, more patients understand the operation and service groups, want to
work more with their own specialty, so then to school in professional courses,
in addition to their own work of in progress, the practice of social work
courses, let me on the operation of non-profit organizations and patients will
be more understanding, hopes one day was officially established as a
corporation aggregate organization."
Sunshine neurofibroma patients Association, after nearly
four years after the operation has really helped, because Li Ming Ren a physician at National
Taiwan University Hospital, (which is a deep sleep fraternity organization) has been unable
to meet many NF family. This association has helped and still wants to upgrade to better and more comprehensive
services, and Fellowship members also throughout the province, want to build
our strengths, to form associations, the Association through organizational
strength, help more Taiwanese NF patients to see their hope for the future.
Under the assistance of the Sunlight Foundation, Accton
Public Museum, National Taiwan University, Chang Gung Memorial Hospital, was officially established in 2010 the Corp. Taiwan neurofibromatosis
association ( http://www.nf.org.tw/). This nonprofit's aim for NF is to care and encourage patients to support each
other, in medical research on the breakthrough, and play the role
of the advocate in health education in the community, so that the public,
government agencies will experience more empathy, acceptance of NF, and help those with NF to make friends
regardless of in life or work, social in, can enjoy equal treatment.
In Woan-Harn's words:
Let yourself grow a lot, no longer suffering from illness, more
courageous in the face of their future life! To pursue the life you want!
In order to make myself more healthy and more dynamic,
I began to participate in road race events, from three kilometers, five
kilometers, seven kilometers, ten kilometers, under the cumulative twelve
kilometers completed (First half horse) my life in 2014 twenty-one kilometers. In order to prepare 21 km road race, I attended the training group, as well as its own practice and adjustment. I think if you believe, you can achieve the purpose. In
the running process, I am aware of my breathing, I pay attention to the pace and
watch my mind, but also to enjoy the wonderful scenery on the way of each race.
Persistence in the end, let me have the courage to not give up a
successful road race of my dreams, I think, a miracle of life, is to rely on myself and create success, people have unlimited possibilities.
Let more people know NF, with our stories, hope for the future in Taiwan, to encourage
more people, thank you for Rachel.
<藝起來串臉>
https://www.facebook.com/NF0517family/
＜社團法人台灣神經纖維瘤協會＞
I think if we really want, we can be able to succeed! My
future is the most beautiful!
Know they are not alone, because I want to share the joy, to my friends!
